It has been a while since I have written and I thought I would like to explain why.
The past few months have been rather trying. Earlier this month my wife and I finally learned why my son has been developmentally delayed. While we were grasping a straws trying to figure out what was wrong we consulted a Pediatric Geneticist at the U Med School who ordered a host of genetics test to rule out certain genetics disorders - one of those test involved the PTEN gene. It turns out that the PTEN gene is the culprit in all of this, my son has a disorder known as Bannayan Riley Rulvacaba Syndrome (BRRS). This particular disorder is rare (I'm not sure how rare, but if the genetics department at the U of U needed do some research before they could explain it to me and my wife it must be pretty rare). He then has been evaluated by developmental pediatricians and a pediatric psychiatrist, who have concluded that he is non-traditionally Autistic (meaning there is no clear guidance on how to help him) and has developed to the level of a 9 month old (at age 2). Needless to say it has been an emotional roller coaster.
With that I have found little passion for blogging, and I really don't plan on posting on a regular basis for an extended period of time. I probably ought to officially resign my membership in the Bloghive advisory board, so that another blogger who is actively blogging can provide a much more contribution to that group. I appreciated working with all of them.
As I learn more about special education funding, I am truly shocked how little state assistance is provided in Utah. My future blogging may focus heavily on that issue.
Until then, adieu......
Tuesday, April 29, 2008
Thursday, April 03, 2008
My First MotoQ Post
I purchased a new Moto-Q phone this weekend, and it is sweet. I thought I would try blogging with it.
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