It has been a while since I have written and I thought I would like to explain why.
The past few months have been rather trying. Earlier this month my wife and I finally learned why my son has been developmentally delayed. While we were grasping a straws trying to figure out what was wrong we consulted a Pediatric Geneticist at the U Med School who ordered a host of genetics test to rule out certain genetics disorders - one of those test involved the PTEN gene. It turns out that the PTEN gene is the culprit in all of this, my son has a disorder known as Bannayan Riley Rulvacaba Syndrome (BRRS). This particular disorder is rare (I'm not sure how rare, but if the genetics department at the U of U needed do some research before they could explain it to me and my wife it must be pretty rare). He then has been evaluated by developmental pediatricians and a pediatric psychiatrist, who have concluded that he is non-traditionally Autistic (meaning there is no clear guidance on how to help him) and has developed to the level of a 9 month old (at age 2). Needless to say it has been an emotional roller coaster.
With that I have found little passion for blogging, and I really don't plan on posting on a regular basis for an extended period of time. I probably ought to officially resign my membership in the Bloghive advisory board, so that another blogger who is actively blogging can provide a much more contribution to that group. I appreciated working with all of them.
As I learn more about special education funding, I am truly shocked how little state assistance is provided in Utah. My future blogging may focus heavily on that issue.
Until then, adieu......